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- About inherited sight loss
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- Types of inherited sight loss
- Achromatopsia
- Alstrom syndrome
- Autoimmune Retinopathy
- Bardet-Biedl syndrome (BBS)
- Best disease
- Central areolar choroidal dystrophy (CACD)
- Charles Bonnet syndrome
- Choroideremia
- Cone-rod dystrophy
- Doyne honeycomb dystrophy
- Familial Exudative Vitreoretinopathy (FEVR)
- Gyrate atrophy of the choroid and retina
- Leber Congenital Amaurosis (LCA)
- Pattern dystrophy
- Rare syndromes
- Refsum syndrome
- Retinitis pigmentosa
- Stargardt disease
- Stickler syndrome
- Usher syndrome
- X-linked retinoschisis (XLRS)
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- Unlock Genetics
News
- Could eye drops treat retinal disease in the future?
- Our biggest Retina UK Lottery winner yet!
- Experimental therapy by Retina UK-funded researchers leads to ‘life changing improvements’
- Progress in Charles Bonnet Syndrome (CBS) research
- SB-007, we’ve been expecting you
- Mirugen – Unlocking the Power of Retina Regeneration
- Sepul Bio begins clinical trial of ultevursen for USH2A-associated RP
- Good luck to Chris and Dianne in Blackpool
- Potential drug targets identified for RP
- New stem cell treatment gains approval to enter US clinical trials
- New Chair of Trustees
- A new approach to treating inherited sight loss
- jCyte have released additional preclinical data regarding jCell
- Limiting side effects from Luxturna treatment
- Applications invited for project grants and studentships
- Thomas Pocklington Trust and Sight Loss Councils ‘Cut it back’ campaign
- Antabuse moves into clinical trial for people with RP
- Significantly worse vision found in female carriers of X-linked RP and Choroideremia
- News: Notice of the forthcoming Retina UK AGM – September 2024
- Gene therapy treatment Luxturna accepted for use in Scotland
- New ‘vision’ and identity sight loss charities
- CRISPR Gene Editing Leads to Improvements
- New Young Persons Project from Retina UK
- New Gene Insertion Therapy for Stargard Disease in Development
- Grant from The National Lottery Community Fund
- Phase 3 clinical trial has been given approval by FDA
- Nanoscope Announces topline results from randomised phase 2B trial of MCO-010 for retinitis pigmentosa
- Gene Therapy improves functional measures in XLRP
- Vitamin A supplements provides no vision benefit to RP patients
- Research news round-up – Spring 2024
- You could win £25,000 every week with the Retina UK Lottery!
- Research grant awards worth £870K announced
- Therapy development updates
- Retina UK awarded prestigious quality standard
- New Eye Care Support Pathway wins cross-sector backing
- Disability sector calling for cost of living support
- A genetic diagnosis for RP can give rise to unexpected surprises
- Hope for the future
- ProQR announces agreement with Laboratoires Théa for inherited retinal disease programmes
- Research round-up, spring 2023
- Notice of the forthcoming Retina UK AGM – June 2023
- BBC investigates unproven treatments for retinitis pigmentosa
- Collective support from Sight Loss Charities
- A week in the life of a researcher
- Research news roundup – innovation in 2022
- Brain stimulation may reduce hallucinations
- Charities demand increase in benefits
- Taking part in the 2021 Virtual London Marathon
- Funding paves the way for achromatopsia
- Does gene therapy always have to be gene-specific?
- Learning from your experiences
- Taking on The Thames Path Challenge
- ProQR announces suspension of LCA10 and USH2A clinical trials
- Retina UK-funded discovery leads to $2.5 award for further research
- Your donations make progress possible
- Light sensing small molecule given green light
- Meira GTx announces positive data from phase clinical trial
- Sirius clinical trial – Exon 13 mutation of USH2A
- Retina UK awards new research funding
- A blog from the research coal face
- Our commitment to lived experience employment
- Research update – ProQR
- Drugs for cancer and alcoholism show promise for RP
- Notice of the forthcoming Retina UK AGM – July 2022
- Help to shape our future
- Improved sensory and auditory function cane tip
- Disappointing news from ProQR clinical trial for LCA10
- ReNeuron trial FAQs
- Beware of online adverts about treatments
- Exciting developments for new treatment research
- Joint statement on benefits and employment support
- jCyte update
- A fond farewell and a warm welcome
- Research brings hope for the future
- Optogenetics
- Unlock Genetics on RNIB Connect Radio
- Amar Latif ‘delighted’ to be an ambassador for Retina UK
- New website aims to increase understanding of genetics
- Study of substances in blood suggests choroideremia is not just an isolated eye disease
- Encouraging results from ProQR USH2A clinical trial
- Taking on the bank!
- ProQR makes progress with potential treatment for LCA
- New mechanism of disease discovered for Retinitis Pigmentosa
- Positive early findings from ProQR trial of USH2A therapy
- ProQR clinical trial for Leber’s Congenital Amourosis (LCA) 10
- First clinical trial participant receives CRISPR-based therapy
- First patient receives ground-breaking treatment
- Gene therapy shows promise in tackling X-linked RP
- Genetic testing: an essential topic for discussion with the IRD community
Resources
- Webinar: Influencing with Retina UK
- e-Newsletter May 2025
- Podcast: Discussing health economics research
- Webinar: Miles for Vision: Behind the Scenes of the London Marathon 2025
- e-Newsletter April 2025
- Graeme Ives: 6 marathons in the Sahara Desert for Retina UK
- Webinar: Genetic Testing: what can I expect?
- Look Forward – Spring 2025 – Issue 185
- Podcast: Sight Loss Survey 2025
- James Treweek: Why I am running the TCS London Marathon 2025
- Webinar: Together We Can: ways you can get involved!
- Podcast: A deep dive into CBS with Dr Jasleen Jolly
- Podcast: Looking back on 2024 with our CEO, Tina Garvey
- Webinar: Mark Goes to Las Vegas
- e-Newsletter January 2025
- Webinar: Ask the expert with Dr Roly Megaw
- Podcast: Dancing through life with sight loss
- e-Newsletter December 2024
- Meet a researcher: Hassina Zeriri
- Webinar: The Big Give: How your donations make a difference
- Look Forward – Winter 2024 – Issue 184
- Podcast: Introducing our new chair
- e-Newsletter October 2024
- Podcast: Retina UK Day
- Our Impact in 2023 – the difference we made
- Webinar: Creating without limits: artistic expression and sight Loss
- RECORDING: Annual Conference – 28 September 2024
- RECORDING: Professionals’ Conference – 27 September 2024
- Leaflet: Are you supporting someone with inherited sight loss
- Kathy Evans, Chair of Trustees
- e-Newsletter September 2024
- Look Forward – Summer 2024 – Issue 183
- Podcast: All about Retina UK!
- Bright Futures: Empowering young adults with inherited sight loss
- Podcast: Accessible voting during the General Election
- E-Newsletter June 2024
- From isolation to exploration: what you can do to build your confidence when travelling
- Webinar: Walking into Wellness: Uniting Movement and Mental Health this May!
- e-Newsletter May 2024
- Webinar: How your donations make a difference…in conversation with our new research grantees
- e-Newsletter April 2024
- Webinar: Fitness, blisters and fundraising
- Look Forward – Spring 2024 – Issue 182
- Meet our volunteers: Daniel Summers
- Meet our volunteers: Dr Katerina Tavoulari
- Meet a researcher: Chloe Brotherton
- Dr Jessie Mole
- e-Newsletter February 2024
- Podcast: Cataract surgery for people living with inherited sight loss
- Webinar: A family’s experience of clinical trial participation
- Meet our Trustee: Colin McArthur
- e-Newsletter January 2024
- Podcast: Blindingly Chatty – Episode 4
- Webinar: Artificial Intelligence with Dr Nikolas Pontikos
- Look Forward – Winter 2023 – Issue 181
- Meet our volunteers: Steve and Khadeja
- Webinar: Support through Access to Work – World Sight Day Special
- Meet a Researcher: Dr Nikolas Pontikos
- e-Newsletter October 2023
- Podcast: The Blind Poet, Dave Steele
- Podcast: QTVI, ECLO, ROVI – what do they mean?
- Webinar: Ask the expert with Samantha de Silva
- e-Newsletter September 2023
- Impact Report 2022
- e-Newsletter August 2023
- Podcast: Blindingly Chatty – Episode 3
- Retina UK Sight Loss Survey
- Meet our supporters: Ashley Campbell
- Meet our supporters: James Clubb
- Meet our supporters: William Taylor
- Meet our supporters: Ian Shorthose
- Meet our supporters: Faye Maguire
- Meet our supporters: Angus Lowe
- Meet our community: Rachael Foley
- Look Forward – Summer 2023 – Issue 180
- Podcast: Blindingly Chatty – episode two
- RECORDING: Professionals’ Conference – 23 June 2023
- RECORDING: Annual Conference – 24 June 2023
- e-Newsletter June 2023
- Leaflet: Introduction to the charity and a guide to services
- Podcast: Blindly Chatty – Episode one
- Webinar: Hair care and styling with Anna Cofone
- e-Newsletter – May 2023
- Volunteer Impact Report
- Meet our volunteers: Cindy Peacock
- Meet our volunteers: Joe Rizzo-Naudi
- Webinar: Getting involved with Retina UK, the value of volunteering
- e-Newsletter – April 2023
- Podcast: What is the UKIRDC and why does it exist?
- Meet our community: Simon Lakin
- Meet our volunteers: Martin Hills
- Information for teachers
- Information for employers
- Children and young people
- Meet our community: Mark Baxter
- Let’s talk about tech
- Annual Report and accounts
- Podcast: Unproven treatments
- Meet our community: James Clarke
- Meet our community: The Kearney family
Events
- 5K A Day In May 2026
- Paris Marathon 2026
- Paris Half Marathon 2026
- Adidas Manchester Marathon 2026
- London Landmarks Half Marathon 2026
- Webinar: Influencing with Retina UK
- Parents and Carer’s Peer Support Group
- Sight Loss Survey 2025
- ‘Talking’ Creative Arts Peer Support Group
- Retina UK Open Day 2025
- TCS London Marathon 2026
- The 5K Wight White Cane Walk 2025
- Bungee Jumping
- Inflatable Assault Courses 2025
- Tough Mudder 2025
- Ultra Challenges 2025
- Ultra Challenges 2025
- Ride Reigate 2025
- Tour Of Pembrokeshire 2025
- Etape Caledonia 2025
- Great Scottish Run Half Marathon 2025
- Great Scottish Run 10K 2025
- Great Manchester Run Half Marathon 2025
- Great Manchester Run 10K 2025
- Great Bristol Run Half Marathon 2025
- Great Bristol Run 10K 2025
- Great Birmingham Run Half Marathon 2025
- Great Birmingham Run 10K 2025
- Edinburgh Marathon 2025
- Edinburgh Half Marathon 2025
- Edinburgh 10K 2025
- Reading Half Marathon 2025
- Robin Hood Half Marathon 2025
- Wolverhampton 10K 2025
- Leicester 10K 2025
- Welsh Three Peaks Challenge 2025
- Ben Nevis Challenge 2025
- Snowdon Challenge 2025
- Scafell Pike Challenge 2025
- Snowdon For Sunrise Challenge 2025
- Lake District Eight Peaks Challenge 2025
- National Three Peaks Challenge 2025
- National Three Peaks Challenge 2025
- Yorkshire Three Peaks Challenge 2025
- Yorkshire Three Peaks Challenge 2025
- Edale Skyline Challenge 2025
- UK Hikes
- Cambridge Half Marathon 2025
- Hampton Court Palace Half Marathon 2025
- Cardiff Half Marathon 2025
- Hackney Half Marathon 2025
- Saucony London 10K 2025
- Royal Parks Half Marathon 2025
- Jump In July 2025
- Webinar: Genetic Testing: what can I expect?
- Miles for Vision: Behind the Scenes of the London Marathon 2025
- Together We Can: ways you can get involved!
- Webinar: Mark Goes to Las Vegas
- QAC Sight Village: Scotland
- QAC Sight Village: London
- QAC Sight Village: Central – Eastside Rooms
- QAC Sight Village: Blackpool
- QAC Sight Village: Wales
- Retina UK Day 2025
- 5K A Day In May 2025
- Webinar: Ask the Expert: Dr Roly Megaw
- TCS London Marathon MyWay 2025 (Virtual Event)
- Webinar: The Big Give: How your donations make a difference
- Belfast Local Peer Support Group
- The Big Half 2025
- Paris Half Marathon 2025
- Paris Marathon 2025
- Great North Run 2025
- RideLondon 2025
- Adidas Manchester Marathon 2025
- Bright Futures: Empowering young adults with inherited sight loss
- Creating without limits: artistic expression and sight Loss
- Young Adults Peer Support Group
- Sahara Desert Trek 2025
- Retina UK’s Big Bag Pack Weekend 2024
- From isolation to exploration
- Retina UK Day 2024
- Jump In July 2024
- Walking into Wellness: Uniting Movement and Mental Health this May!
- Buckinghamshire Local Peer Support Group
- London Landmarks Half Marathon 2025
- Webinar: A family’s experience of clinical trial participation
- Webinar: In conversation with our new research grantees
- Webinar: Fitness, blisters and fundraising
- Superhero Tri Powered By Marvel 2024
- At Home Superheroes Powered By Marvel 2024
- South Yorkshire Local Peer Support Group
- Hope To Seaview 2024
- Oxford Half Marathon 2024
- Leeds 10K 2024
- Sheffield 10K 2024
- Retina UK Professionals’ Conference 2025
- Retina UK Annual Conference 2025
- Scafell Pike Challenge 2024
- Yorkshire Three Peaks Challenge 2024