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- Information and support
- About inherited sight loss
- Cataracts and Macular Oedema
- Eye structure
- Looking after your vision
- Types of inherited sight loss
- Achromatopsia
- Age-Related Macular Degeneration
- Alstrom syndrome
- Autoimmune Retinopathy
- Bardet-Biedl syndrome (BBS)
- Bassen-Kornweig syndrome
- Best disease
- Charles Bonnet Syndrome
- Choroideremia
- Classic retinitis pigmentosa
- Cone-rod dystrophy
- Gyrate Atrophy
- Juvenile macular degeneration
- Leber Congenital Amaurosis (LCA)
- NARP syndrome
- Refsum syndrome
- Rod-cone dystrophy
- Stargardt disease
- Usher syndrome
- Contact our Helpline
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- About inherited sight loss
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- Unlock Genetics
News
- New Eye Care Support Pathway wins cross-sector backing
- Disability sector calling for cost of living support
- A genetic diagnosis for RP can give rise to unexpected surprises
- Hope for the future
- ProQR announces agreement with Laboratoires Théa for inherited retinal disease programmes
- Research round-up, spring 2023
- Notice of the forthcoming Retina UK AGM – June 2023
- BBC investigates unproven treatments for retinitis pigmentosa
- Collective support from Sight Loss Charities
- A week in the life of a researcher
- Research news roundup – innovation in 2022
- Brain stimulation may reduce hallucinations
- Charities demand increase in benefits
- Taking part in the 2021 Virtual London Marathon
- Funding paves the way for achromatopsia
- Does gene therapy always have to be gene-specific?
- Learning from your experiences
- Taking on The Thames Path Challenge
- ProQR announces suspension of LCA10 and USH2A clinical trials
- Retina UK-funded discovery leads to $2.5 award for further research
- Your donations make progress possible
- Light sensing small molecule given green light
- Meira GTx announces positive data from phase clinical trial
- Sirius clinical trial – Exon 13 mutation of USH2A
- Retina UK awards new research funding
- A blog from the research coal face
- Our commitment to lived experience employment
- Research update – ProQR
- Drugs for cancer and alcoholism show promise for RP
- Notice of the forthcoming Retina UK AGM – July 2022
- Help to shape our future
- Improved sensory and auditory function cane tip
- Disappointing news from ProQR clinical trial for LCA10
- ReNeuron trial FAQs
- Beware of online adverts about treatments
- Exciting developments for new treatment research
- Joint statement on benefits and employment support
- jCyte update
- A fond farewell and a warm welcome
- Research brings hope for the future
- Optogenetics
- Unlock Genetics on RNIB Connect Radio
- Amar Latif ‘delighted’ to be an ambassador for Retina UK
- New website aims to increase understanding of genetics
- Study of substances in blood suggests choroideremia is not just an isolated eye disease
- Encouraging results from ProQR USH2A clinical trial
- Taking on the bank!
- ProQR makes progress with potential treatment for LCA
- New mechanism of disease discovered for Retinitis Pigmentosa
- Positive early findings from ProQR trial of USH2A therapy
- ProQR clinical trial for Leber’s Congenital Amourosis (LCA) 10
- First clinical trial participant receives CRISPR-based therapy
- First patient receives ground-breaking treatment
- Gene therapy shows promise in tackling X-linked RP
- Genetic testing: an essential topic for discussion with the IRD community
Resources
- Look Forward – Winter 2023 – Issue 181
- Meet our volunteers: Steve and Khadeja
- Webinar: Support through Access to Work – World Sight Day Special
- Meet a Researcher: Dr Nikolas Pontikos
- e-Newsletter October 2023
- Podcast: The Blind Poet, Dave Steele
- Podcast: QTVI, ECLO, ROVI – what do they mean?
- Webinar: Ask the expert with Samantha de Silva
- e-Newsletter September 2023
- Impact Report 2022
- e-Newsletter August 2023
- Podcast: Blindingly Chatty – Episode 3
- Retina UK Sight Loss Survey
- Meet our supporters: Ashley Campbell
- Meet our supporters: James Clubb
- Meet our supporters: William Taylor
- Meet our supporters: Ian Shorthose
- Meet our supporters: Faye Maguire
- Meet our supporters: Angus Lowe
- Meet our community: Rachel Foley
- Look Forward – Summer 2023 – Issue 180
- Podcast: Blindingly Chatty – episode two
- Professionals’ Conference – 23 June 2023
- Annual Conference – 24 June 2023
- e-Newsletter June 2023
- Introduction to the charity and a guide to services
- Podcast: Blindly Chatty – Episode one
- Webinar: Hair care and styling with Anna Cofone
- e-Newsletter – May 2023
- Volunteer Impact Report
- Meet our volunteers: Cindy Peacock
- Meet our volunteers: Joe Rizzo-Naudi
- Webinar: Getting involved with Retina UK, the value of volunteering
- e-Newsletter – April 2023
- Podcast: What is the UKIRDC and why does it exist?
- Meet our community: Simon Lakin
- Meet our community: Martin Hills
- Information for teachers
- Information for employers
- Children and young people
- Meet our community: Mark Baxter
- Let’s talk about tech
- Annual Report and accounts
- Podcast: Unproven treatments
- Meet our community: James Clarke
- Meet our community: The Kearney family
- Meet our community: Russ Stephenson
- Meet our community: Bhavini Makwana
- Webinar: Low vision services, aids and equipment
- Meet our Trustee: Vanessa Forster
- Meet our Trustee: Ashley Grist, Treasurer
- Meet our Trustee: Simon Keightley
- Meet our Trustee: Dr Lucy Withington
- Meet our Trustee: Professor John Marshall MBE
- Meet our Trustee: Dr Elizabeth Graham FRCP FRCOphth
- Meet our Trustee: Roger Backhouse
- Meet our Trustee: Lynda Cantor MBE, Hon President
- Meet our Trustee: Dr Martin Kirkup, Chair of Trustees
- Meet our Ambassador: Bhavini Makwana
- Meet our Ambassador: Steve Bate MBE
- Meet our Ambassador: Amar Latif
- Meet a Researcher: Tomasz Tomkiewicz
- Meet a Researcher: Jing Yu
- Meet a Researcher: Stéphanie Cornelis and Mubeen Khan
- Meet a Researcher: Dr Jenny Dewing
- Meet a Researcher: Hajrah Sarkar
- Meet a Researcher: Dr Rachel Taylor
- Meet a Researcher: Elena Piotter
- Look Forward – Spring 2023 – Issue 179
- Webinar: Ask the expert with Simon Keightley
- e-Newsletter – February 2023
- Webinar: Supporting Retina UK and what it can do for you
- Podcast: Legacies – why they are so important to us
- e-Newsletter – January 2023
- Webinar: Maximising your income – Social security support
- Oxfordshire information event (online)
- e-Newsletter – December 2022
- The Big Give Christmas Challenge 2022
- Look Forward – Winter 2022 – Issue 178
- Webinar: Makeup tips and tricks with Bhavini
- e-Newsletter – October 2022
- Webinar: Looking after your emotional health
- e-Newsletter – September 2022
- Look Forward – Summer 2022 – Issue 177
- Professionals’ Conference – 8 July 2022
- Webinar: Usher syndrome mini series – part two
- Annual Conference – 9 July 2022
- Webinar: Technology solutions with VisionAid
- Webinar: Usher syndrome mini series – part one
- Webinar: “Mini-Retina” – the future of restored vision
- Webinar: Medical images and what they show
- Look Forward – Spring 2022 – Issue 176
- Webinar: Get Active with British Blind Sport
- Webinar: Visual hallucinations and Charles Bonnet syndrome
- Webinar: Dr Salwah Rehman, Clinical trials process
- Webinar: Michael Gilhooley, Optogenetics
- Webinar: Inflammation and retinal degeneration in RP
- FAQs: Luxturna (voretigene neparvovec)
- Webinar: DNA and RNA tools for Stargardt’s Disease
Events
- Sheffield Half Marathon 2024
- Edinburgh 10K 2024
- Amsterdam Marathon 2024
- Amsterdam Half Marathon 2024
- Robin Hood Half Marathon 2024
- Cardiff Half Marathon 2024
- Reading Half Marathon 2024
- London local peer support group
- 2025 TCS London Marathon
- Isle of Wight local peer support group
- Manchester local peer support group
- Berkshire local peer support group
- Scotland peer support group
- Tyne & Wear local peer support group
- Wrexham & Wales peer support group
- West Midlands local peer support group
- Bristol, Bath & Wilts local peer support group
- Barcelona Marathon 2024
- Paris Marathon 2024
- Barcelona Half Marathon 2024
- Paris Half Marathon 2024
- ‘Talking’ Tech peer support group
- London local peer support group
- The Blind Lads Loch Inn – Gents Peer Support Group
- National peer support group
- Berkshire local peer support group
- Tyne & Wear local peer support group
- Bristol Half Marathon 2024 – Team Finlay
- Wrexham & Wales peer support group
- Manchester local peer support group
- Glasgow local peer support group
- Bonfire Skydive 2023
- Webinar: Ask the expert with Samantha de Silva
- Webinar: AI (Artificial Intelligence) with Dr Nikolas Pontikos
- Webinar: Support through Access to Work – World Sight Day Special
- Belfast local peer support group
- Isle of Wight local peer support group
- West Midlands local peer support group
- East Midlands local peer support group
- Halloween Skydive 2023
- Berkshire local peer support group
- Bristol, Bath & Wilts local peer support group
- West Yorkshire local peer support group
- Isle of Wight local peer support group
- ‘Talking’ Tech peer support group
- West Midlands local peer support group
- *CANCELLED* Kent local peer support group
- Edinburgh local peer support group
- East Midlands local peer support group
- Berkshire local peer support group
- Manchester local peer support group
- Belfast local peer support group
- Wrexham & Wales peer support group
- ‘Talking’ Tech peer support group
- Hampshire local peer support group
- West Yorkshire local peer support group
- East Midlands local peer support group
- Kent local peer support group
- Berkshire local peer support group
- Manchester local peer support group
- Belfast local peer support group
- Oxford local peer support group
- West Midlands local peer support group
- Annual General Meeting (AGM) voting form
- Kent local peer support group
- 2024 TCS London Marathon
- Talking Tech peer support group
- Run Locally
- Webinar: Hair care and styling with Anna Cofone
- Webinar: Getting involved with Retina UK, the value of volunteering
- Professionals’ Conference
- Gaming for Retina UK
- Retina UK Quiz
- Chiltern 50 Challenge
- Thames Path Challenge
- Thames Bridges Trek
- South Coast Challenge
- Peak District Challenge
- Lake District Challenge
- London 2 Brighton Challenge
- Jurassic Coast Challenge
- Wing Walking
- Skydiving
- 10 For 10 Virtual Challenge
- RideLondon-Essex 100
- Ride for Retina UK
- Virtual TCS London Marathon
- Manchester Half Marathon
- Royal Parks Half Marathon
- Edinburgh Marathon Festival Half Marathon
- Cardiff Half Marathon
- Great North Run 2024
- Edinburgh Marathon
- 2023 TCS London Marathon
- Manchester Marathon
- ASICS London 10K 2024
- Edinburgh Marathon Festival 10k
- Edinburgh Marathon Festival 5k
- Brighton Marathon 2024
- West Yorkshire local peer support group