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Online information & support

Retina UK has a number of online support resources which we offer via social media.


We have a Retina UK Facebook page where you can learn about organisational updates, fundraisers and other events. It can be found here: Retina UK Facebook page

Retina UK offers an Information & Support Group hosted on Facebook; this group has over 5,000 members and is an active resource with members from around the world contributing daily. It can be found here: Retina UK Information & Support Facebook group.

Retina UK events

We offer a series of free to attend Webinars to our community covering a wide range of different topics. Our Conferences are also available to attend online (as well as in-person). Recordings of our previous Webinars and Conferences can be found in our Resources.

Retina International

Retina International, the global voice of many inherited sight loss charities like ours, has developed an Inherited Retinal Diseases tool kit to help those affected. An educational resource, it was developed with those affected by inherited sight loss and gives an overview of the conditions. It is regularly updated and can be found here: Retina International’s IRD Toolkit.

Gene Vision

Information for patients and professionals is available on the Gene.Vision website: https://gene.vision/. The site includes in-depth condition-specific information for patients and their families as well as current research and clinical trials.