Shop 0300 111 4000
View cart
Donate

Helpline

0300 111 4000
View cart
Two men facing the camera. They are both smiling

Welcome to Retina UK

We are a charity supporting people affected by inherited sight loss and investing in medical research to help make their challenges a thing of the past.

Get in touch!
Lottery balls in lots of different bright colours with different numbers printed on them in black

Win up to £25,000 every Friday with our Retina UK Lottery!

50+ supporters have won a cash prize so far and you could be next. Sign up today for £1 a week and you could win up to £25,000 every Friday, whilst also supporting Retina UK's vital work.
Sign up today for £1 a week!

How can we support you?

Whether you are looking for practical information or emotional support, online, by phone or face-to-face, we’re here to help.

Information about conditions

A letter 'I' in an italic font

Events

An illustration of a calendar with a small black square illustrating highlighting a specific date.

Support groups

An illustration of two hands holding each other.

Retina UK community

An illustration of a computer monitor with two speech bubbles in the centre. one of the speech bubbles features a heart, in black.

Helpline

A telephone handset with two curved lines illustrating a phone call

Unlock Genetics

A DNA helix tilted slightly to the right

Discover Wellbeing

An illustration of a head with a black heart in the centre where the brain would be.

Talk and support

An illustration of a headset (earphones with speaker) with a heart in the centre, between the two earphones.

Featured news and resources

News Retina UK Sight Loss Survey 2025 Findings from our survey of over 600 people living with inherited sight loss. June 2025

Every experience counts: Insights from our sight loss survey

A huge thank you to everyone who completed our 2025 sight loss survey. This year we received over 600 responses. It follows similar surveys in 2019 and 2022 which led directly to the introduction of our Unlock Genetics and Discover Wellbeing resources, as well as shaping our work with the professional community who support people with inherited sight loss.

Resource The cover of the Spring 2026 edition of Look Forward

Look Forward – Spring 2026 – Issue 189

Inside: Our intrepid Sahara Trek #TeamRetinaUK tell us about their incredible experience. 2026 is now fully underway and we are excited to tell you about our plans. Could you take part in a challenge event or volunteer to do a bucket collection in London for Retina UK?

Support our 50th Anniversary Appeal

Get behind us and advance the search for treatments in 2026. You can also text ANNIVERSARY to 70560 to donate £10 to Retina UK, where donations will cost £10 plus 1 standard network rate message.

Make a donation today!

Get involved

Join us in person or online for one of our upcoming events or why not take on a challenge to support Retina UK?
Dr Birthe Hilgen

Research update

Glasgow Science Centre 50 Pacific Quay Glasgow G51 1EA

Join us to hear the latest inherited sight loss research news at a special in-person Retina UK event in Scotland in March.

Hands held up with drinks glasses held. There is shiny gold confetti falling from the ceiling.

50th Anniversary Gala Dinner 2026

London Hilton on Park Lane, 2 Park Lane, London, W1K 1BE

It’s time to reflect, celebrate and look to the future... and you’re invited. Join us for an unforgettable evening as we celebrate the culmination of our 50th anniversary year.