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Dan found out he had retinitis pigmentosa in February 2022, but he feels it has been “on cards for years”. He said he had “an inkling something was up but never did anything about it: a typical guy I guess!”

• Case study - community
• Written

Graeme's son is living with retinitis pigmentosa and he has decided to take on an extreme challenge - running 250km across the Sahara Desert, with 6 stages, varying in length from 21km to 82 km, over 7 days.

• Case study - community
• Written

Colin was born in Dumfries and now lives near Glasgow. He is living with Usher syndrome, a dual sensory loss condition affecting his eyes and his hearing. He and his wife, Lyn, both have guide dogs: Jumble and Yozi.

• Case study - Ambassador
• Written

The latest news from Retina UK. Please use the filters to find the articles which interest you.

Are you affected by inherited sight loss? We are here to help.

Mark your special day, whilst fundraising for people with inherited sight loss.

We are proud to work collaboratively with a number of corporate partners to enable our community to live fulfilled lives today as well as supporting the pharmaceutical industry in their mission to develop potential new treatments.

Caryn talks about her experience taking part in the 2021 Virtual London Marathon.

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Our vision is a world where everyone with inherited sight loss is able to live a fulfilling life.