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There are about 125 million rod and cone cells within the retina that act as the eye's light receptors.

Whether you are looking for practical information or emotional support, online, by phone or face-to-face, we’re here to help.

The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.

We are proud to announce that Amar Latif - adventurer, entrepreneur, TV presenter and public speaker - is to join Retina UK as a volunteer ambassador.

• News

Lockdown may have put the brakes on Euroglaze’s fundraising campaign for Retina UK initially, but the team at the Barnsley based Rehau fabricator are now on a roll once again.

• News
• Retinitis pigmentosa

In this article, we hear Colin's story and the reasons why he has hope for the future.

• News

Thursday 24 September 2026, 7.00pm - 8.00pm - via Zoom - Please come and join Anna & Ellie for a special focus group session where we are delighted to welcome our guest speaker Ebony Hemmings, Founder of a startup tech company called Tekfluence AI.

• Local Peer Support Group

Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

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• Audio
• Written

Cataracts occur fairly frequently and at a relatively early age within the Retina UK community of people with inherited retinal conditions. A question that comes up over and over again is whether or not to have cataract surgery.

• Podcast
• Audio

The collective partnership of eight of the leading charities in the sight loss sector, known for the last three years as the VI Charity Sector Partnership, has re-launched under a new identity of the ‘Vision Partnership’ with a re-invigorated purpose and new strategic focus.

• News