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Cataracts and macular oedema are both associated with inherited sight loss and may respond to treatment.

We are currently funding a range of exciting projects and programmes, all of which aim to enhance our understanding of inherited sight loss, and inform the development of treatments for the estimated two million people affected worldwide.

As well as many of the well-known races, we also have exclusive places available in hundreds of local runs. Wherever you live, you can run as part of #TeamRetinaUK this year!

• Running
• Close to home

A recording of the Retina UK Professionals' Conference on 18 September 2026. The Conference was held at the Edgbaston Park Hotel and Conference Centre, Birmingham and online.

• Conference
• Audio
• Video

The Retina UK Professionals’ Conference is aimed at anyone who works with our community in a professional capacity. Free to attend.

• Conferences
• Online

We carried out our first Sight Loss Survey in 2019 and used what we learned to improve our support. It was repeated in 2022 and in 2025. These are the findings.

• Audio
• Written

Familial Exudative Vitreoretinopathy (FEVR) is an inherited disorder that causes progressive vision loss.

Pattern dystrophy is an umbrella term for a group of retinal conditions. It is characterized by various patterns of pigment deposition within the macula.

Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.

The Retina UK Annual Conference will be held in September. You can join the Conference in-person or online. Free to attend.

• Conferences
• Online