Trusts and Foundations
Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.
Search
Search results
Learning from your experiences
Thank you to all those who completed our recent Sight Loss Survey – almost 700 of you took the time to share your experiences.
‘Talking’ Creative Arts Peer Support Group
Thursday 28 August 2025, 7.00pm - 8.00pm - via Zoom - Please come and join facilitators Steve Cox and Mark Baxter for our second 'Talking' Creative Arts meeting where will be joined by Vinicius Les, founder of London art studio Colour and Clay.
Drugs for cancer and alcoholism show promise for RP
With all the interest in exciting gene and cell therapies for inherited sight loss, it’s easy to forget that more traditional drugs can also hold promise.
Beware of online adverts about treatments
The Retina UK community is sometimes targeted by adverts online or in social media, offering invasive treatments for inherited sight loss.
Women’s Peer Support Group
Wednesday 5 November 2025, 7.00pm - 8.00pm - via Zoom - Please come and join facilitators Danielle & Perm for our latest Women's Peer Support Group where we will be joined by guest speaker Seema Flower, Founder and Managing Director of Blind Ambition.
National Peer Support Group
Thursday 9 October 2025, 7.00pm - 8.00pm - via Zoom - Please come and join us for our Autumn National meeting where we are delighted to welcome our guest speaker Stuart Colville from The Wise Group's Energy Advice Service.
For professionals
Information for healthcare professionals: Genetic testing and counselling in inherited retinal disease
Taking on the bank!
Lockdown may have put the brakes on Euroglaze’s fundraising campaign for Retina UK initially, but the team at the Barnsley based Rehau fabricator are now on a roll once again.
Joint statement on benefits and employment support
As a coalition of sight loss charities, we are calling on the Government to make the benefit system and employment support fit for purpose for blind and partially sighted people.