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Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.

Thank you to all those who completed our recent Sight Loss Survey – almost 700 of you took the time to share your experiences.

• News

Thursday 28 August 2025, 7.00pm - 8.00pm - via Zoom - Please come and join facilitators Steve Cox and Mark Baxter for our second 'Talking' Creative Arts meeting where will be joined by Vinicius Les, founder of London art studio Colour and Clay.

• Local Peer Support Group

With all the interest in exciting gene and cell therapies for inherited sight loss, it’s easy to forget that more traditional drugs can also hold promise.

• News

The Retina UK community is sometimes targeted by adverts online or in social media, offering invasive treatments for inherited sight loss.

• News

Information for healthcare professionals: Genetic testing and counselling in inherited retinal disease

Lockdown may have put the brakes on Euroglaze’s fundraising campaign for Retina UK initially, but the team at the Barnsley based Rehau fabricator are now on a roll once again.

• News
• Retinitis pigmentosa

As a coalition of sight loss charities, we are calling on the Government to make the benefit system and employment support fit for purpose for blind and partially sighted people.

• News

Whether you are a professional looking for practical information for yourself, or practical or emotional support for your clients, online, by phone or face-to-face, we're here to help. All of our services are free to access and offered in a range of accessible formats. 

Monday 15 September 2025, 7.00pm - 8.30pm - via Zoom - Come and join James and the group for their latest online social catch up.

• Local Peer Support Group