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Complaints Policy

We always aim to provide a high standard of service to our community. If you are unhappy with any of our services it is important that you let us know.

Genetic testing: an essential topic for discussion with the IRD community

As Luxturna reaches the clinic and other gene-specific therapies for inherited retinal disease get closer to the end of the development pipeline, it is becoming ever more important that affected families can access a genetic diagnosis, potentially opening up choices around treatment and clinical trial participation.

The Spring 2023 edition of the Retina UK newsletter, Look Forward, which includes articles about our upcoming events, research updates and more.

Look Forward – Summer 2023 – Issue 180

Did you join either of our Conferences this year? You can read about them inside this edition of Look Forward. We’ve had some fantastic feedback from our delegates so if you weren’t able to attend, you can watch or listen to the recordings from the day on our website.

Women's peer support group - Community focused peer support groups

Women’s Peer Support Group

Tuesday 28 July 2026, 7.00pm - 8.00pm - via Zoom - Please come and join Perm & Danielle for their latest meet up where we are delighted to welcome our inspirational guest speaker Emma Jayne Basudev who will be talking to us about mindfulness.

An image of Paul Bacon with his partner and son in a restaurant.

RP Awareness Month – Paul’s Story

During RP awareness month, Paul Bacon has shared how his diagnosis has impacted his life and shared messages about how non visually impaired people can support those living with inherited sight loss. To learn more about inherited sight loss please take the time to read Paul's story.