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Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.

The latest research news piece from Retina UK.

• News
• Usher syndrome

It has recently been announced that Meira-GTx, who originally developed bota-vec and collaborated with J&J during its early clinical trials, have entered into an asset purchase agreement with J&J to acquire bota-vec and progress the program towards global regulatory filings for approval.

• News
• Retinitis pigmentosa

Tuesday 8 September 2026, 7.00pm - 8.00pm - via Zoom - Please come and join facilitator Stuart Francis and the group for their latest online meeting where we are delighted to welcome our guest speaker Michelle Jones, Operations Manager at Sight Life.

• Local Peer Support Group

Inside: Our intrepid Sahara Trek #TeamRetinaUK tell us about their incredible experience. 2026 is now fully underway and we are excited to tell you about our plans. Could you take part in a challenge event or volunteer to do a bucket collection in London for Retina UK?

• Look Forward
• Audio
• Written

Wednesday 12 August 2026, 7.00pm - 8.00pm - via Zoom - Please come and join facilitators Cindy & Jane for our latest meeting where we will be reviewing our current book choice and discussing your suggestions and ideas for our next read.

• Local Peer Support Group

A research project funded by Retina UK helped pave the way to a new gene therapy that has recently produced encouraging results in two young people with achromatopsia, a condition that causes complete colour-blindness and poor overall vision from birth.

• News
• Achromatopsia

The latest developments in technology.

• Information event
• Audio

Martin started volunteering for Retina UK in 2014 after retiring as a Chartered Civil Engineer.

• Case study - community
• Audio
• Written