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Charles Bonnet syndrome (CBS) causes people who have lost a lot of sight to see things that aren’t real (hallucinations).

Alstrom syndrome is an inherited condition which affects many body systems.

Leber Congenital Amaurosis (LCA) is a rare genetic eye disease that appears at birth or in the first few months of life.

We carried out our first Sight Loss Survey in 2019 and used what we learned to improve our support. It was repeated in 2022. These are the findings.

• Audio
• Written

Join the Retina UK membership today! Anyone is welcome to join; whether you are living with a sight loss condition yourself, related to somebody who is, or if you are working as a sight loss professional.

Familial Exudative Vitreoretinopathy (FEVR) is an inherited disorder that causes progressive vision loss.

Pattern dystrophy is an umbrella term for a group of retinal conditions. It is characterized by various patterns of pigment deposition within the macula.

Could you take on an adventure of a lifetime for Retina UK and take part in the Sahara Desert Trek in November 2025?

• Walks and treks
• United Kingdom

Come together for Retina UK Day on Thursday, 10 October 2024 and help us raise awareness and funds for those who are living with inherited sight loss.

• Fundraising events
• United Kingdom

Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.