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These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.

Charles Bonnet syndrome (CBS) causes people who have lost a lot of sight to see things that aren’t real (hallucinations).

Alstrom syndrome is an inherited condition which affects many body systems.

Join the Retina UK membership today! Anyone is welcome to join; whether you are living with a sight loss condition yourself, related to somebody who is, or if you are working as a sight loss professional.

Pattern dystrophy is an umbrella term for a group of retinal conditions. It is characterized by various patterns of pigment deposition within the macula.

Central Areolar Choroidal Dystrophy (CACD) is a rare inherited condition that affects the macula, the small area in the middle of the retina that is primarily responsible for our central vision.

Could you take on an adventure of a lifetime for Retina UK and take part in the Camino de Santiago, across Spain in September 2026?

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• United Kingdom

Leber Congenital Amaurosis (LCA) is a rare genetic eye disease that appears at birth or in the first few months of life.

We carried out our first Sight Loss Survey in 2019 and used what we learned to improve our support. It was repeated in 2022 and in 2025. These are the findings.

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Could you take on an adventure of a lifetime for Retina UK and take part in the Great Wall of China Trek in November 2026?

• Walks & Treks
• United Kingdom