Resources

We talk to BBC reporter Ramadan Younes and Professor Robert Maclaren following the BBC documentary Blind Faith

Dan found out he had retinitis pigmentosa in February 2022, but he feels it has been “on cards for years”. He said he had “an inkling something was up but never did anything about it: a typical guy I guess!”

Our West Yorkshire peer support group recently welcomed The Blind Poet, Dave Steele, who is living with retinitis pigmentosa, to their meeting. He talks candidly about his diagnosis, his poetry and his optimistic mindset. 

“Being part of something and feeling that you are not alone,” are just two of the positive benefits Cindy Peacock says she experiences as a volunteer with Retina UK.

Our amazing volunteers are diverse in age, background and ethnicity. The one thing they have in common is that they are all living with, or directly affected by, an inherited sight loss condition.

Martin started volunteering for Retina UK in 2014 after retiring as a Chartered Civil Engineer.

My name is Mark Baxter and from an early age I was diagnosed with a deteriorating retinal eye condition called retinitis pigmentosa or RP for short, which will slowly lead to blindness.

Aged 20, James was diagnosed with retinitis pigmentosa at a routine eye appointment in September 2015 and registered partially sighted, just prior to buying his first car and taking his driving test.

Emily Kearney is mum to four boys, aged four to 13, two of whom are living with an inherited sight loss condition.