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Volunteers are highly valued members of the Retina UK team and essential to our ability to achieve our vision of a world where all those affected by inherited retinal conditions are able to live a fulfilling life.

James Birtley is a Retina UK supporter and volunteer who is living with retinitis pigmentosa. He is also a scientist with a particular interest in the structure of proteins, the complex molecules that form the building blocks of our bodies.

• News

There are many ongoing clinical and laboratory studies around the world, exploring innovative approaches to treating inherited sight loss.

• News

Retina UK invites applications for funding for innovative, high quality research projects investigating the causes and potential treatments for all forms of inherited retinal disease. We are particularly keen to receive proposals with demonstrable translational potential.

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Steve has been volunteering for Retina UK since its formation in 1976 and has been a part of the Helpline team since the early 1980s.. He remembers very well a caller named Khadeja, who called the Helpline multiple times, following her diagnosis with RP in 1999.

• Case study - community
• Written

Funding from Retina UK has allowed to team to explore the viability of gene therapy as a treatment for RP and related conditions, and build a pipeline of clinical trials.

In this article, we hear Colin's story and the reasons why he has hope for the future.

• News

In 2023, the annual Isle of Wight walk in support of Retina UK will return. Starting at Ryde Pier, walkers will follow a five mile scenic walk with spectacular views.

• Walks and treks
• Isle of Wight

Formal notice of the forthcoming Annual General Meeting in September 2024.

• News

The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.