Retina UK Professionals’ Conference 2024
The Retina UK Professionals’ Conference is aimed at anyone who works with our community in a professional capacity.
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Usher syndrome
Usher syndrome is an inherited condition that affects both hearing and vision.
Choroideremia
Choroideremia is a genetic condition that causes progressive vision loss, mostly in males.
Retina UK Annual Conference 2024
The Retina UK Annual Conference will be held on Saturday 28 September. You can join the Conference in-person or online.
Best disease
Best disease, also known as Best vitelliform macular dystrophy (BVMD), is is an inherited eye condition associated with progressive degeneration of the macula and is a form of juvenile macular dystrophy.
Research we fund
We are currently funding a range of exciting projects and programmes, all of which aim to enhance our understanding of inherited sight loss, and inform the development of treatments for the estimated two million people affected worldwide.
Stickler syndrome
Stickler syndrome is a genetic connective tissue disorder.
Refsum syndrome
Refsum syndrome is an inherited metabolic condition, associated with elevated phytanic acid plasma levels, which impacts many body systems.
Achromatopsia
Achromatopsia is a rare hereditary vision disorder affecting approximately 1 in 30,000 newborn babies.
Run Locally
As well as many of the well known races, we also have places available in hundreds of local runs. Wherever you live, you can run as part of #TeamRetinaUK!