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We carried out our first Sight Loss Survey in 2019 and used what we learned to improve our support. It was repeated in 2022. These are the findings.

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Gyrate atrophy of the choroid and retina, shortened to gyrate atrophy, is an inherited disorder of protein metabolism characterised by progressive vision loss.

Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.

Leber Congenital Amaurosis (LCA) is a rare genetic eye disease that appears at birth or in the first few months of life.

Retinitis pigmentosa (RP) is an inherited eye condition that affects the photoreceptor cells responsible for capturing images from the visual field.

Cone-rod dystrophies are a group of inherited diseases that affect the photoreceptor (light sensing) cells that are responsible for capturing images from the visual field.

Could you take on an adventure of a lifetime for Retina UK and take part in the Sahara Desert Trek in November 2025?

• Walks and treks
• United Kingdom

Join the Retina UK membership today! Anyone is welcome to join; whether you are living with a sight loss condition yourself, related to somebody who is, or if you are working as a sight loss professional.

You can download the last three years’ Trustees’ Annual Report & Accounts. They are also available on the Charity Commission website.

• Impact Report
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These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.