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An illustration of two parents and a child being supported on a hand

Genetic counselling

Genetic counsellors are specially trained healthcare professionals with extensive scientific knowledge who spend time talking to families living with inherited conditions.

Supporter stories

Our community support us in many different ways, from completing surveys, volunteering, raising awareness and fundraising.

Optogenetics

The BBC covered a story on Monday 24 May about optogenetics partially restoring the sight of a man living with retinitis pigmentosa in France.