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Find out more about Martyn Osborne's big win on the Retina UK Lottery and why he would recommend playing.

• News

This July, Ben Ramus will lead a group of twelve adventurers as they take on the renowned National Three Peaks Challenge, in aid of national sight loss charity, Retina UK. Ben has decided to take on the epic challenge in recognition of two of his uncles’ sight loss journey, as they live with the rare inherited sight loss condition, retinitis pigmentosa.

• Story
• Retinitis pigmentosa

Imagine, if you can, evading capture from an elite team of hunters for 21 days when you’re blind! Ste and his co-fugitive, Chris, did just that in the new series of Hunted (Channel 4) which starts on Sunday 12 October.

• Story
• Retinitis pigmentosa

This edition includes exciting news about our Annual and Professionals’ Conferences. We hope as many of you as possible can join us in Manchester, or online, in September. You’ll also find updates about the latest research and a feature on one of our funded researchers, Dr Jörn Lakowski.

• Look Forward
• Audio
• Written

The latest podcast from Retina UK.

• Podcast
• Audio

Catherine L’Estrange, aged 11 from London has become the first individual in the UK to receive an investigative gene therapy treatment for retinal dystrophy associated with the BBS10 gene.

• News

Biotechnology company ProQR has announced that its clinical trials of sepofarsen for Leber congenital amaurosis type 10 and ultevursen for USH2A-mediated retinitis pigmentosa will be wound down with immediate effect.

• News

The aim of these pages is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.

Mark your special day, whilst fundraising for people with inherited sight loss.

The following questions are often asked by people contacting Retina UK.