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Our community support us in many different ways, from completing surveys, volunteering, raising awareness and fundraising.

Genetic counsellors are specially trained healthcare professionals with extensive scientific knowledge who spend time talking to families living with inherited conditions.

Imagine, if you can, evading capture from an elite team of hunters for 21 days when you’re blind! Ste and his co-fugitive, Chris, did just that in the new series of Hunted (Channel 4) which starts on Sunday 12 October.

• Story
• Retinitis pigmentosa

My name is Mark Baxter and from an early age I was diagnosed with a deteriorating retinal eye condition called retinitis pigmentosa or RP for short, which will slowly lead to blindness.

• Case study - community
• Written

The latest podcast from Retina UK.

• Podcast
• Audio

The cover of this edition celebrates the success of our amazing London Marathon team. Together they have raised more than £43,000.

• Look Forward
• Audio
• Written

Bhavini was diagnosed with RP in 1997 aged 17. The consultant who confirmed her diagnosis told her that “there was no cure or treatment and she should prepare to go blind".

• Case study - community
• Written

The following questions are often asked by people contacting Retina UK.

Mark your special day, whilst fundraising for people with inherited sight loss.

The aim of these pages is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.