London & South East Local Peer Support Group
Friday 23 May, 5.30pm - 9.30pm - In-person - Come and join Bhavini and the group for their latest outing to see an audio described performance of The Play That Goes Wrong at the Duchess Theatre in London.
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Information and support
Are you affected by inherited sight loss? We are here to help.
Meet our community: The Kearney family
Emily Kearney is mum to four boys, aged four to 13, two of whom are living with an inherited sight loss condition.
A genetic diagnosis for RP can give rise to unexpected surprises
James Birtley is a Retina UK supporter and volunteer who is living with retinitis pigmentosa. He is also a scientist with a particular interest in the structure of proteins, the complex molecules that form the building blocks of our bodies.
Wedding Fundraising
Find out how you can mark your special day while fundraising for people with inherited sight loss.
West Midlands Local Peer Support Group
Saturday 24 May, 11am onwards - In-person - Please come and join Perm and the group for a fascinating day out at the West Midlands Police Museum.
Autosomal dominant inheritance
Autosomal dominant inheritance means that the faulty gene is on an autosome (any chromosome other than the sex chromosomes) and that only one faulty copy is needed to cause sight loss.
SB-007, we’ve been expecting you
Introducing Splice Bio, a genetic medicines company with some exciting developments for Stargardt’s patients.
From isolation to exploration
During Loneliness Awareness Week, we're hosting a special webinar to address the challenges faced by individuals with sight loss when it comes to travel and mobility.
From isolation to exploration: what you can do to build your confidence when travelling
During Loneliness Awareness Week, we're hosting a special webinar to address the challenges faced by individuals with sight loss when it comes to travel and mobility.