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Are you a parent or carer of a child or young person living with an inherited retinal dystrophy?

Genetic counsellors are specially trained healthcare professionals with extensive scientific knowledge who spend time talking to families living with inherited conditions.

We always aim to provide a high standard of service to our community. If you are unhappy with any of our services it is important that you let us know.

Genetic testing, usually via a blood sample, is used to try and identify which gene contains the fault that is causing an individual’s sight loss.

Martin started volunteering for Retina UK in 2014 after retiring as a Chartered Civil Engineer.

• Case study - community
• Audio
• Written

TPT and Sight Loss Councils: Cut it back campaign

• News

Inside this edition, set yourself a challenge in 2024, plus find out about our brand new lottery.

• Look Forward
• Audio
• Written

This edition marks the start of the charity's 50th anniversary year. It includes lots of ways to get involved over the next 12 months along with details of our Annual and Professionals' Conferences in September.

• Look Forward
• Audio
• Written

Giving a regular monthly or quarterly donation of any amount is a wonderful way to help Retina UK support the inherited sight loss community.

Saturday 9 May 2026, 12.30pm - 6.00pm - In-person - You are invited to join Rachael and the group for their latest in-person get together at The Freemount bar in Manchester followed by the Barrel of Laughs matinee show at the Frog & Bucket Comedy Club.

• Local Peer Support Group