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Are you a parent or carer of a child or young person living with an inherited retinal dystrophy?

Genetic counsellors are specially trained healthcare professionals with extensive scientific knowledge who spend time talking to families living with inherited conditions.

We always aim to provide a high standard of service to our community. If you are unhappy with any of our services it is important that you let us know.

Genetic testing, usually via a blood sample, is used to try and identify which gene contains the fault that is causing an individual’s sight loss.

Martin started volunteering for Retina UK in 2014 after retiring as a Chartered Civil Engineer.

• Case study - community
• Audio
• Written

TPT and Sight Loss Councils: Cut it back campaign

• News

Inside this edition, set yourself a challenge in 2024, plus find out about our brand new lottery.

• Look Forward
• Audio
• Written

This edition marks the start of the charity's 50th anniversary year. It includes lots of ways to get involved over the next 12 months along with details of our Annual and Professionals' Conferences in September.

• Look Forward
• Audio
• Written

Giving a regular monthly or quarterly donation of any amount is a wonderful way to help Retina UK support the inherited sight loss community.

Tuesday 31 March 2026, 7.00pm - 8.00pm - via Zoom - Please come and join us for our Spring meeting where we are delighted to welcome our guest speaker Stuart Hann, The Blind Chocolatier who runs his own business and shop in the Lake District!

• Local Peer Support Group