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Our volunteers are highly valued members of the Retina UK team and their roles are essential to help support and enable people affected by inherited sight loss to live fulfilling lives.

• Impact Report
• Audio
• Written

Saturday 12 October, 1.00pm - 7.00pm - *Rescheduled from 10 August* Come and join us for our second collaborative in-person event of 2024 with Northern Alliance VIP's when we return to The Bridge Hotel in Newcastle.

• Local peer support group

We’re all still buzzing from our recent conferences. We do hope you enjoyed them as much as we did. If you weren’t able to join us, then you can watch or listen to the recordings on our website.

• Look Forward
• Audio
• Written

Including a gift to Retina UK in your Will is an incredibly special way to help our vital work continue into the future.

Thursday 3 October 2024, 7.00pm - 8.00pm - via Zoom - Come and join Richard & Rachael to chat about all things travel!

• Local peer support group

The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Biotechnology company ProQR has announced encouraging results from its phase 1/2 clinical trial of an innovative treatment for sight loss caused by faults in a specific section of the USH2A gene.

• News

The BBC World Service has undertaken an investigation of unproven treatments for retinitis pigmentosa (RP) and has produced a documentary film, called Blind Faith, which is available on BBC iPlayer.

• News
• Retinitis pigmentosa

Disulfiram (Antabuse), FDA-approved for deterring alcohol, is in a phase 1 trial at the University of Washington to improve vision in retinitis pigmentosa.

• News
• Retinitis pigmentosa

Celebrate the life of your loved one, by donating in their memory and help us fund more research and support, now.