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The cover of the spring 2025 edition of Look Forward, featuring a photograph of comedian Chris McCausland on the cover

Look Forward – Spring 2025 – Issue 185

This edition of Look Forward includes the very latest news about an experimental therapy by Retina UK funded researchers, an article about one of our PhD students, a calendar of events in 2025, the usual research news round-up and lots more. Please take the time to complete our Sight Loss Survey, enclosed with this edition. You can find out more about the Survey.

Retina UK Sight Loss Survey 2025 Findings from our survey of over 600 people living with inherited sight loss. June 2025

Retina UK Sight Loss Survey

We carried out our first Sight Loss Survey in 2019 and used what we learned to improve our support. It was repeated in 2022 and in 2025. These are the findings.

A photo of our volunteers gathered at our conference.

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Since we were founded in 1976, we have invested more than £18 million into some of the most pioneering medical research - because of amazing supporters like you.

Retina UK Knowledge-base: Refsum syndrome

Refsum syndrome

Refsum syndrome is an inherited metabolic condition, associated with elevated phytanic acid plasma levels, which impacts many body systems.

Retina UK Knowledge-base: Usher syndrome

Usher syndrome

Usher syndrome is an inherited condition that affects both hearing and vision.