How we can work together
We can provide all the support your organisation needs to work with us; from ideas to practical support and materials. The Retina UK team will help your contribution be as fun and rewarding as possible.
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We can provide all the support your organisation needs to work with us; from ideas to practical support and materials. The Retina UK team will help your contribution be as fun and rewarding as possible.
Despite the knock-on effects of the pandemic, there’s been a lot going on this year in the world of research! Here are snapshots of a few stories that have appeared in the Research News section of our website in 2022.
The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.
Biotechnology company ProQR has announced that its clinical trials of sepofarsen for Leber congenital amaurosis type 10 and ultevursen for USH2A-mediated retinitis pigmentosa will be wound down with immediate effect.
In February 2022, ProQR announced a disappointing outcome for their phase 2/3 trial of sepofarsen for Leber congenital amaurosis type 10 (LCA10).
Saturday 11 April 2026, 11.00am - 1.00pm - In-person - Come and join Valerie and the group for our first meeting of 2026 when we return to the Festival Theatre, Edinburgh to hear from guest speaker Chloe Brotherton, PhD Student working with Dr Roly Megaw.
Tuesday 24 February 2026, 7.00pm - 8.00pm - Via Zoom - Please come and join Perm and the group for their first online social catch up of the year.
Tuesday 17 March 2026, 7.00pm - 8.00pm - via Zoom - Please come and join us for a Wales region-wide meeting with guest speaker Owen Williams, Director of Wales Council of the Blind and our new South Wales Peer Support Group facilitator, Stuart Francis.
Monday 16 March 2026, 7.00pm - 8.00pm - Via Zoom - Come and join James and the group for their latest online social catch up.
Saturday 21 February 2026, 12.00pm - 2.00pm - In-person - Come and join Retina UK's James Clarke, Martik Aghajanian and the group for our latest in-person social get together at Grappa Bar & Restaurant in Sheffield.