How we can work together
We can provide all the support your organisation needs to work with us; from ideas to practical support and materials. The Retina UK team will help your contribution be as fun and rewarding as possible.
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We can provide all the support your organisation needs to work with us; from ideas to practical support and materials. The Retina UK team will help your contribution be as fun and rewarding as possible.
Despite the knock-on effects of the pandemic, there’s been a lot going on this year in the world of research! Here are snapshots of a few stories that have appeared in the Research News section of our website in 2022.
The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.
Biotechnology company ProQR has announced that its clinical trials of sepofarsen for Leber congenital amaurosis type 10 and ultevursen for USH2A-mediated retinitis pigmentosa will be wound down with immediate effect.
In February 2022, ProQR announced a disappointing outcome for their phase 2/3 trial of sepofarsen for Leber congenital amaurosis type 10 (LCA10).
Tuesday 27 October, 7.00pm - 8.00pm - via Zoom - Please come and join facilitator Perm and the group for their latest online catch up where we are delighted to welcome our inspirational guest speaker Shazia Begum.
Wednesday 25 November 2026, 7.00pm - 8.00pm - via Zoom - Please join Sarah, our Glasgow Group facilitator for an Autumn online Scotland Peer Support Group meeting to share your thoughts and ideas for the future of our Edinburgh and Glasgow groups.
Monday 16 November 2026, 7pm - 8pm - via Zoom - Please come and join facilitator James and the Berkshire group for their latest online social catch up.
Saturday 8 August 2026, 12.30pm - 6.30pm - In-person - Please come and join Rachael and the group at The Waldorf pub in Manchester for their latest social get together including guest speakers Katy Whitwell & Lisa Howell from the RNIB's ECLO service.
Have you ever been tempted to take part in the TCS London Marathon? In 2022 the TCS London Marathon raised £58.3 million for charity so it’s a vital source of income.