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Tuesday 12 May 2026, 7.00pm - 8.00pm - via Zoom - Please come and join facilitator Stuart Francis and our new South Wales Peer Support Group where we are delighted to welcome guest speaker Becs Harris, Wellbeing Service Manager at Sight Cymru.
Including a gift to Retina UK in your Will is an incredibly special way to help our vital work continue into the future.
In 2014 we funded an exciting new collaborative project. The UK Inherited Retinal Dystrophy Consortium (UKIRDC) Project brought together the four largest research groups in the UK specialising in inherited retinal diseases (IRDs).
During our 50th anniversary year, Retina UK was the focus of a BBC Lifeline Appeal on Sunday 16 November 2025.
Retina UK is delighted to have awarded a new three-year research grant to Prof Majlinda Lako at Newcastle University for a project entitled: To establish AAV.PRPF31 gene augmentation in PRPF31-deficient RPE and photoreceptor cells and assess its efficacy in restoring RPE and photoreceptor function.
Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.
Luxturna, a gene therapy, is only for the treatment of Leber congenital amaurosis type 2 (LCA2) and severe early-onset RP caused by mutations in a specific gene called RPE65.
Our monthly e-Newsletter featuring the latest updates from Retina UK.
Fancy fundraising for Retina UK? Here’s a few pointers to help get you started.
The following questions are often asked by people contacting Retina UK.
