Online information & support
Retina UK has a number of online support resources which we offer via social media.
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About Unlock Genetics
The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.
ProQR announces suspension of LCA10 and USH2A clinical trials
Biotechnology company ProQR has announced that its clinical trials of sepofarsen for Leber congenital amaurosis type 10 and ultevursen for USH2A-mediated retinitis pigmentosa will be wound down with immediate effect.
Men’s Peer Support Group
Wednesday 5 March, 7.00pm - 8.30pm - via Zoom - Come and join us for our latest Men's Peer Support Group social catch up.
Research update – ProQR
In February 2022, ProQR announced a disappointing outcome for their phase 2/3 trial of sepofarsen for Leber congenital amaurosis type 10 (LCA10).
Corporate partnerships
Our partnerships are mutually beneficial. For Retina UK this means we can fund more research and offer support on a local level, while our partners can achieve corporate social responsibility objectives whilst making a tangible impact.
Berkshire Local Peer Support Group
Tuesday 11 March, 7.00pm - 8.00pm - Via Zoom - Come and join James and the group for their latest online social catch up.
‘Talking’ Tech Peer Support Group
Wednesday 19 March 2025, 7.00pm - 8.00pm - via Zoom - Come and join us for our latest meeting where we will be joined by our guest speaker Darren Tan from Zappar who will be talking about their way and product finding app, Zapvision.
Webinar: Fitness, blisters and fundraising
Have you ever been tempted to take part in the TCS London Marathon? In 2022 the TCS London Marathon raised £58.3 million for charity so it’s a vital source of income.