Types of inherited sight loss
Inherited progressive sight loss is caused by a range of rare genetic conditions. We specialise in those which affect the retina.
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Inherited progressive sight loss is caused by a range of rare genetic conditions. We specialise in those which affect the retina.
We regularly make applications for grants to fund our information and support projects and have recently been successful in securing £12,000 from The National Lottery Community Fund.
Biotechnology company ProQR has announced encouraging results from its phase 1/2 clinical trial of an innovative treatment for sight loss caused by faults in a specific section of the USH2A gene.
Inside this edition, register now for our AI webinar on 7 December with Dr Nikolas Pontikos.
Stem cells are a special type of cell, which under the right conditions can be encouraged to grow into any other type of cell in the body, including retinal cells (rods, cones and retinal pigment epithelial cells).
Thursday 8 October 2026, 7.00pm - 8.00pm - via Zoom - Please come and join us for our Autumn meeting where 'This is Your Day to Have Your Say', celebrating both World Sight Day and Retina UK Day.
Saturday 5 September 2026, 12.30pm - 4.00pm - In-person - Please come and join facilitator Bhavini Makwana and the group at the Elephant & Barrel in Stockwell for a special celebration looking back on 50 years of peer support in London & the Southeast.
Tribute to Retina UK founder Lynda Cantor MBE
We’re all still buzzing from our recent conferences. We do hope you enjoyed them as much as we did. If you weren’t able to join us, then you can watch or listen to the recordings on our website.