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The latest research news piece from Retina UK.

• News
• Usher syndrome

Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.

Tuesday 21 April 2026, 7.00pm - 8.00pm - Via Zoom - Please come and join Perm and the group for their latest meeting where we are delighted to welcome our guest speaker Barrie Lane, IT & Assistive Technology Trainer at the Beacon Centre for the Blind.

• Local Peer Support Group

Inside: Our intrepid Sahara Trek #TeamRetinaUK tell us about their incredible experience. 2026 is now fully underway and we are excited to tell you about our plans. Could you take part in a challenge event or volunteer to do a bucket collection in London for Retina UK?

• Look Forward
• Audio
• Written

If you are considering employing someone with inherited sight loss, or have an employee recently been diagnosed with the condition, you will need to take steps to ensure that you treat them fairly and that they can work safely and effectively.

• Written

The latest developments in technology.

• Information event
• Audio

A research project funded by Retina UK helped pave the way to a new gene therapy that has recently produced encouraging results in two young people with achromatopsia, a condition that causes complete colour-blindness and poor overall vision from birth.

• News
• Achromatopsia

Progress towards treatments for inherited retinal conditions continues to gather pace and there’s been lots going on in the last few months, with more and more approaches being explored. This round-up gives a flavour of the variety of developments, including plenty that are not specific to a particular genetic fault.

• News

The Retina UK community is sometimes targeted by adverts online or in social media, offering invasive treatments for inherited sight loss.

• News