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Retina UK is delighted that the Scottish Medicines Consortium (SMC) has accepted the gene therapy Luxturna (voretigene neparvovec) for ongoing use by the NHS in Scotland.

• News
• Leber congenital amaurosis (LCA)

We are proud to work collaboratively with a number of corporate partners to enable our community to live fulfilled lives today as well as supporting the pharmaceutical industry in their mission to develop potential new treatments.

In this article, we hear Colin's story and the reasons why he has hope for the future.

• News

A discovery made as part of research funded by Retina UK has led to a prestigious award of $2.5 million, enabling scientists to undertake more in-depth investigations and work towards a treatment for a particular type of retinitis pigmentosa.

• News

Pancake Day or Shrove Tuesday, which in 2025 falls on Tuesday 4 March, could be a great opportunity to fundraise for Retina UK, whilst having fun and eating lots of yummy pancakes!

Retina UK invites expressions of interest to their first major innovation grant call, which will result in an award of up to £1million over five years as a strategic and targeted investment to result in transformative impact for therapy for inherited retinal dystrophy.

Tuesday 31 March 2026, 7.00pm - 8.00pm - via Zoom - Please come and join us for our Spring meeting where we are delighted to welcome our guest speaker Stuart Hann, The Blind Chocolatier who runs his own business and shop in the Lake District!

• Local Peer Support Group

As people living with sight loss we are constantly looking for solutions to make our lives easier without too much effort or cost writes Jonathan Abro.

• Written

Chris McCausland is heading to Blackpool for week 10 of Strictly Come Dancing.

• Story
• Retinitis pigmentosa

These frequently asked questions should provide a response for most of the queries you might raise.