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Bardet-Biedl syndrome (BBS)

Bardet-Biedl syndrome (BBS) is an inherited, rare condition which impacts many parts of the body including the retina.

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Charles Bonnet syndrome

Charles Bonnet syndrome (CBS) causes people who have lost a lot of sight to see things that aren’t real (hallucinations).

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Trusts and Foundations

Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.

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Information and support services

Whether you are looking for practical information or emotional support, online, by phone or face-to-face, we’re here to help.