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Biotechnology company ProQR has announced encouraging results from its phase 1/2 clinical trial of an innovative treatment for sight loss caused by faults in a specific section of the USH2A gene.

• News

Dr Nikolas Pontikos is a Senior Research Fellow at UCL Institute of Ophthalmology, and has been working on inherited retinal conditions for several years.

• Case study - research
• Written

Tuesday 14 July 2026, 7.00pm - 8.00pm - via Zoom - Please come and join Anna & Ellie for our latest meeting where we are delighted to welcome our guest speaker Ellis Ellis from Vision Aid who will be giving a live audible demo of some of their products.

• Local Peer Support Group

Colin McArthur re-joined the board in 2024 after serving as a trustee between January 2008 and September 2019.

• Trustee
• Written

Have you ever been tempted to take part in the TCS London Marathon? In 2022 the TCS London Marathon raised £58.3 million for charity so it’s a vital source of income.

• Webinar
• Audio
• Video

TPT and Sight Loss Councils: Cut it back campaign

• News

Saturday 9 May 2026, 1.00pm - 5.00pm - In-person - Come and join Kim and the Belfast Bumpers Group for their latest in-person meet up for lunch at Robinsons Bar in Belfast.

• Local Peer Support Group

Introducing Splice Bio, a genetic medicines company with some exciting developments for Stargardt’s patients.

• News
• Stargardt disease

Tuesday 23 June 2026, 7.00pm - 8.00pm - via Zoom - Please come and join facilitators Brian & Steve along with our guest speaker Ellis Ellis from Vision Aid who will be getting hands on with some products from home assistive tech company Unwired Things.

• Local Peer Support Group

In August 2025, 8-year-old Rose Earnshaw is taking on a challenge like no other – completing 5 laps of her local village park (1 mile) every day throughout the month of August, in support of Retina UK’s vital work.

• Case study - community
• Written