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Stargardt disease
Stargardt disease is the most common form of juvenile macular dystrophy (or inherited degeneration).
Bardet-Biedl syndrome (BBS)
Bardet-Biedl syndrome (BBS) is an inherited condition which impacts many parts of the body including the retina.
Refsum syndrome
Refsum syndrome is an inherited metabolic condition, associated with elevated phytanic acid plasma levels, which impacts many body systems.
Local peer support groups
Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.
Run Locally
As well as many of the well known races, we also have places available in hundreds of local runs. Wherever you live, you can run as part of #TeamRetinaUK!
Retinitis pigmentosa
Retinitis pigmentosa (RP) is an inherited eye condition that affects the photoreceptor cells responsible for capturing images from the visual field.
Stickler syndrome
Stickler syndrome is a genetic connective tissue disorder.
Choroideremia
Choroideremia is a genetic condition that causes progressive vision loss, mostly in males.
Cone-rod dystrophy
Cone-rod dystrophies are a group of inherited diseases that affect the photoreceptor (light sensing) cells that are responsible for capturing images from the visual field.