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Choroideremia is a genetic condition that causes progressive vision loss, mostly in males.

Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students. We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

• Look Forward
• Audio
• Written

Choroideremia is a rare genetic condition resulting in progressive sight loss in men.

• News
• Choroideremia

It was previously believed that female carriers of X-linked inherited retinal diseases (IRDs) like X-linked retinitis pigmentosa (RP and Choroideremia) remained unaffected by sight loss.

• News
• Choroideremia
• Retinitis pigmentosa

Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.

• Case study - community
• Written

A virtual delegate bag for our online attendees - Professionals' Conference 2024

Download copies of our Knowledge-base material

A general overview of the clinical trials process and practicalities, including issues to consider if you are given the opportunity to take part.

• Webinar
• Video

The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.