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Stickler syndrome is a genetic connective tissue disorder.

We carried out our first Sight Loss Survey in 2019 and used what we learned to improve our support. It was repeated in 2022. These are the findings.

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A recording of the Retina UK Professionals' Conference on 27 September 2024. The Conference was held at the Pendulum Hotel in Manchester and online.

• Conference
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A recording of the Retina UK Annual Conference on 28 September 2024. The Conference was held at the Pendulum Hotel in Manchester and online.

• Conference
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The difference we made in 2023.

• Impact Report
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Saturday 14 December, 5.00pm - 9.00pm - In-person - Join us at the Peacock Theatre for a magical stage adaptation of the much-loved picture book The Snowman, by Raymond Briggs.

• Local peer support group

Our privacy and cookie policies are available in PDF, Word and audio formats.

We’re all still buzzing from our recent conferences. We do hope you enjoyed them as much as we did. If you weren’t able to join us, then you can watch or listen to the recordings on our website.

• Look Forward
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Inside this edition, register now for our AI webinar on 7 December with Dr Nikolas Pontikos.

• Look Forward
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Did you join either of our Conferences this year? You can read about them inside this edition of Look Forward. We’ve had some fantastic feedback from our delegates so if you weren’t able to attend, you can watch or listen to the recordings from the day on our website.

• Look Forward
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