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Charles Bonnet syndrome (CBS) causes people who have lost a lot of sight to see things that aren’t real (hallucinations).

Pattern dystrophy is an umbrella term for a group of retinal conditions. It is characterized by various patterns of pigment deposition within the macula.

We are currently funding a range of exciting projects and programmes, all of which aim to enhance our understanding of inherited sight loss, and inform the development of treatments for the estimated two million people affected worldwide.

A round-up of the latest research into inherited retinal conditions - February 2024.

• News

Introducing Splice Bio, a genetic medicines company with some exciting developments for Stargardt’s patients.

• News
• Stargardt disease

It’s not very often that we come across a researcher working on a project inspired by their own lived experience of a sight loss condition.

• Case study - research
• Written

Dr Nikolas Pontikos is a Senior Research Fellow at UCL Institute of Ophthalmology, and has been working on inherited retinal conditions for several years.

• Case study - research
• Written

Join us to find out how your donations make a direct different and fund research.

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Join us to find out how your donations make a direct different and fund research.

• Webinar
• Audio
• Video

We are proud to work collaboratively with a number of corporate partners to enable our community to live fulfilled lives today as well as supporting the pharmaceutical industry in their mission to develop potential new treatments.