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Dan found out he had retinitis pigmentosa in February 2022, but he feels it has been “on cards for years”. He said he had “an inkling something was up but never did anything about it: a typical guy I guess!”

• Case study - community
• Written

The cover of this edition celebrates the success of our amazing London Marathon team. Together they have raised more than £43,000.

• Look Forward
• Audio
• Written

Steve is a Paralympian who was diagnosed with retinitis pigmentosa (RP) in 2011.

• Case study - Ambassador
• Written

Roger has retinitis pigmentosa, as do his son, mother and grandfather. He was officially diagnosed aged 16.

• Trustee
• Written

Beacon Therapeutics announced positive results from their phase 2 gene therapy trial for X-linked retinitis pigmentosa (XLRP) caused by mutations in the RPGR gene.

• News
• Retinitis pigmentosa

Retina UK is delighted to announce that it has awarded three new research grants worth more than £870,000.

• News
• Leber congenital amaurosis (LCA)
• Retinitis pigmentosa

A virtual delegate bag for our online attendees - Professionals' Conference 2024

Download copies of our Knowledge-base material

Emily Kearney is mum to four boys, aged four to 13, two of whom are living with an inherited sight loss condition.

• Case study - community
• Written

Next month, Anisha and Sheena will take on The Thames Path Challenge. Together, they explain why they decided to join #TeamRetinaUK.

• News
• Retinitis pigmentosa