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It is important to avoid harming your vision, particularly if you have an inherited sight loss condition.

Since the publication of this newsletter our founder and honorary president Lynda Cantor MBE has passed away. We are all deeply saddened by this news.

• Look Forward
• Audio
• Written

Choroideremia is a rare genetic condition resulting in progressive sight loss in men.

• News
• Choroideremia

If you support someone with inherited sight loss and they need additional support or information, you can make a referral to one or more of our dedicated services.

Celebrate the life of your loved one, by donating in their memory and help us fund more research and support, now.

Organising your own fundraising is great fun and a brilliant way to involve your friends, family and local community.

Skydiving is an exhilarating experience, and you can do this while supporting our cause. Various dates and locations are available across the UK.

• Extreme Challenges
• Various

In this episode, Lauren sits down with Louise Gow, a low vision specialist and the Head of Eye Health, Optometry and Low Vision at the RNIB.

• Podcast
• Audio

Inside: Our intrepid Sahara Trek #TeamRetinaUK tell us about their incredible experience. 2026 is now fully underway and we are excited to tell you about our plans. Could you take part in a challenge event or volunteer to do a bucket collection in London for Retina UK?

• Look Forward
• Audio
• Written

This July, Ben Ramus will lead a group of twelve adventurers as they take on the renowned National Three Peaks Challenge, in aid of national sight loss charity, Retina UK. Ben has decided to take on the epic challenge in recognition of two of his uncles’ sight loss journey, as they live with the rare inherited sight loss condition, retinitis pigmentosa.

• Story
• Retinitis pigmentosa