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Tuesday 25 March 2025, 7.00pm - 8.00pm - via Zoom - Please come and join us for our Spring meeting where we are delighted to welcome back guest speaker Paul Ashurst, Founder of AbleNet UK.

• Local Peer Support Group

Saturday 5 April, 1.00pm - 7.00pm - Come and join Colin Hetherington and the group for our first in-person event of 2025 at our brand new venue, the Tyneside Irish Centre in Newcastle.

• Local Peer Support Group

Information for healthcare professionals: Genetic testing and counselling in inherited retinal disease

In recent years there has, understandably, been a lot of excitement around cutting-edge therapies that target the specific genetic faults underlying inherited sight loss.

• News

This edition of Look Forward is packed full of details of our plans for 2022. There is so much going on and being able to get together in person is a big part of that.

• Look Forward
• Audio
• Written

Researchers who received funding from Retina UK have carried out experimental gene therapy that is reported to have led to ‘life changing improvements’ to sight for four children with inherited sight loss.

• News
• Leber congenital amaurosis (LCA)

Sepul Bio begins clinical trial of ultevursen for USH2A-associated RP

• News
• Retinitis pigmentosa

The BBC covered a story on Monday 24 May about optogenetics partially restoring the sight of a man living with retinitis pigmentosa in France.

• News

In this article, we hear Colin's story and the reasons why he has hope for the future.

• News