Search

We’re all still buzzing from our recent conferences. We do hope you enjoyed them as much as we did. If you weren’t able to join us, then you can watch or listen to the recordings on our website.

• Look Forward
• Audio
• Written

Inside: Our intrepid Sahara Trek #TeamRetinaUK tell us about their incredible experience. 2026 is now fully underway and we are excited to tell you about our plans. Could you take part in a challenge event or volunteer to do a bucket collection in London for Retina UK?

• Look Forward
• Audio
• Written

Information for healthcare professionals: Genetic testing and counselling in inherited retinal disease

Saturday 22 August 2026, 1.00pm - 7.00pm - In-person - Come and join Colin and the group at the Tyneside Irish Centre for their latest in-person event in Newcastle.

• Local Peer Support Group

The latest webinar from Retina UK.

• Webinar
• Audio
• Video

At Retina UK we get many queries from those overseas affected by inherited retinal dystrophies (IRDs). Understandably, many want to know about research and how they can get involved. Retina UK does not organise trials or directly recruit participants.

This is the final edition of Look Forward this year and what a year it has been! We’ve had some very positive feedback about our Conferences and the Big Give Christmas Challenge is back - a great opportunity to double your donation at no extra cost to you! We’ve included a handy ‘What’s on’ article which outlines some of our plans for 2026. We would like to take this opportunity to wish all of our readers a very Merry Christmas and a happy and fulfilling New Year.

• Look Forward
• Audio
• Written

In recent years there has, understandably, been a lot of excitement around cutting-edge therapies that target the specific genetic faults underlying inherited sight loss.

• News

Our young adults got to grips with white water rafting recently, building confidence and resilience while having fun.

• Look Forward
• Audio
• Written