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Achromatopsia is a rare hereditary vision disorder affecting approximately 1 in 30,000 newborn babies.

Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.

Cataracts and macular oedema are both associated with inherited sight loss and may respond to treatment.

As well as many of the well known races, we also have places available in hundreds of local runs. Wherever you live, you can run as part of #TeamRetinaUK!

• Run
• Close to home

Could you run the London Landmarks Half Marathon 2025 for #TeamRetinaUK?

• Run
• United Kingdom

Could you take part in RideLondon 2025 for #TeamRetinaUK?

• Cycle
• London

Our Peer Support Groups are growing. Find out more about what's planned for the future.

UK researchers have discovered that passing a weak electrical current between electrodes on a person’s scalp may lead to a reduction in frequency of the visual hallucinations experienced by some people living with sight loss.

• News
• Charles Bonnet Syndrome

The project aims to develop a cost effective method of examining the entire ABCA4 gene to look for variations that might cause disease.

• Case study - research
• Written