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Volunteers are highly valued members of the Retina UK team and essential to our ability to achieve our vision of a world where all those affected by inherited retinal conditions are able to live a fulfilling life.

Celebrate the life of your loved one, by donating in their memory and help us fund more research and support, now.

Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.

Since the publication of this newsletter our founder and honorary president Lynda Cantor MBE has passed away. We are all deeply saddened by this news.

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The following questions are often asked by people contacting Retina UK.

Including a gift to Retina UK in your Will is an incredibly special way to help our vital work continue into the future.

This edition includes exciting news about our Annual and Professionals’ Conferences. We hope as many of you as possible can join us in Manchester, or online, in September. You’ll also find updates about the latest research and a feature on one of our funded researchers, Dr Jörn Lakowski.

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If you have a child with a visual impairment joining your class, you may have questions about how best you can teach and help them.

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Different inherited sight loss conditions present noticeable symptoms at different times.

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These are some of the most commonly asked questions about genetic testing and counselling.