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Does gene therapy always have to be gene-specific?

Early 2020 marked an important milestone for the Retina UK community, when the first person with an inherited retinal condition received NHS treatment to potentially slow or even stop the progression of their sight loss.

A black and white photograph of Dave Steele. He is wearing a three piece suit and holding a cane in his right hand

Podcast: The Blind Poet, Dave Steele

Our West Yorkshire peer support group recently welcomed The Blind Poet, Dave Steele, who is living with retinitis pigmentosa, to their meeting. He talks candidly about his diagnosis, his poetry and his optimistic mindset. 

Images shows a group of three walkers walking along a trail with other walkers in the distance. Green fields and trees line the trail. 'Chiltern 50 Challenge' is written on the top right of the image.

Chiltern 50 Challenge

This ‘end of season’ 50km looped route covers some of the best of the Chilterns countryside. You can walk, jog, or run along historic trails and over rolling hills. A half distance 25km challenge is also available.

A large group of Retina UK volunteers standing outside in the sunshine

Meet our volunteers

Volunteers founded our charity in the 1970s and they continue to be at our heart.

A woman seen from behind facing a computer screen

The UK Inherited Retinal Dystrophy Consortium

In 2014 we funded an exciting new collaborative project. The UK Inherited Retinal Dystrophy Consortium (UKIRDC) Project brought together the four largest research groups in the UK specialising in inherited retinal diseases (IRDs).