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There are many ongoing clinical and laboratory studies around the world, exploring innovative approaches to treating inherited sight loss.

• News

Pancake Day or Shrove Tuesday, which in 2025 falls on Tuesday 4 March, could be a great opportunity to fundraise for Retina UK, whilst having fun and eating lots of yummy pancakes!

Dan found out he had retinitis pigmentosa in February 2022, but he feels it has been “on cards for years”. He said he had “an inkling something was up but never did anything about it: a typical guy I guess!”

• Case study - community
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CRISPR gene editing leads to improvements in vision for people with inherited blindness, clinical trial shows.

• News

Retina UK is delighted that the Scottish Medicines Consortium (SMC) has accepted the gene therapy Luxturna (voretigene neparvovec) for ongoing use by the NHS in Scotland.

• News
• Leber congenital amaurosis (LCA)

A guide for professionals. Retina UK is a national charity. We offer information and support to people affected by inherited sight loss to enable them to lead better lives today and fund medical research to accelerate the search for treatments for the future. We also support professionals working with them.

• Leaflet
• Audio
• Written

The latest podcast from Retina UK.

• Podcast
• Audio

In 2014 we funded an exciting new collaborative project. The UK Inherited Retinal Dystrophy Consortium (UKIRDC) Project brought together the four largest research groups in the UK specialising in inherited retinal diseases (IRDs).

We are proud to work with a number of organisations that share our aims and values.

Join us and the Low Vision Team from Focus Birmingham talk about how you can access your local low vision service, the benefits of a low vision assessment and see some of the equipment that can be provided to you.

• Webinar
• Audio
• Video