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Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.

Elizabeth first heard about Retina UK (then the British Retinitis Pigmentosa Society) when our founder, Lynda Cantor MBE, spoke on BBC In Touch in early 1977. She went along to the charity’s AGM the same year and stayed in touch with Mary Guest, one of the speakers.

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Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

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Our monthly e-Newsletter featuring the latest updates from Retina UK.

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Biotechnology company Ocugen has announced the enrolment completion of their phase 3 clinical trial for OCU400.

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Our monthly e-Newsletter featuring the latest updates from Retina UK.

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Whether you are a professional looking for practical information for yourself, or practical or emotional support for your clients, online, by phone or face-to-face, we're here to help. All of our services are free to access and offered in a range of accessible formats. 

Are you a parent or carer of a child or young person living with an inherited retinal dystrophy?

This is the final edition of Look Forward this year and what a year it has been! We’ve had some very positive feedback about our Conferences and the Big Give Christmas Challenge is back - a great opportunity to double your donation at no extra cost to you! We’ve included a handy ‘What’s on’ article which outlines some of our plans for 2026. We would like to take this opportunity to wish all of our readers a very Merry Christmas and a happy and fulfilling New Year.

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Giving a regular monthly or quarterly donation of any amount is a wonderful way to help Retina UK support the inherited sight loss community.