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e-Newsletter May 2024

Our monthly e-Newsletter featuring the latest updates from Retina UK.

Retina UK Professionals' Conference 2024

RECORDING: Professionals’ Conference – 27 September 2024

A recording of the Retina UK Professionals' Conference on 27 September 2024. The Conference was held at the Pendulum Hotel in Manchester and online.

RECORDING: Annual Conference – 28 September 2024

A recording of the Retina UK Annual Conference on 28 September 2024. The Conference was held at the Pendulum Hotel in Manchester and online.

The text in graphic says: Eye care support pathway Supporting you at every stage of your journey Underneath a graphic shows the four stages of an individual’s journey with the following text: 1. Having my initial appointment 2. Waiting well 3. Having my diagnosis confirmed 4. Waiting well 5. Support after my diagnosis 6. Waiting well 7. Living well with my condition Underneath this graphic it outlines what an individual can expect on their journey. Understand my eye care journey Understand my diagnosis Access emotional and practical support

New Eye Care Support Pathway wins cross-sector backing

New Eye Care Support Pathway wins cross-sector backing for transforming the way people with care needs and sight loss are helped emotionally and practically.

News

Retina UK Webinars: Influencing with Retina UK - Matthew Carr

Webinar: Influencing with Retina UK

The latest webinar from Retina UK.

Phase 3 clinical trial has been given approval by FDA

The FDA has given Ocugen permission to start their phase 3 gene therapy clinical trial for retinitis pigmentosa (RP).

Belite Bio announces promising phase 3 results for Stargardt disease

The latest research news from Retina UK.

A genetic diagnosis for RP can give rise to unexpected surprises

James Birtley is a Retina UK supporter and volunteer who is living with retinitis pigmentosa. He is also a scientist with a particular interest in the structure of proteins, the complex molecules that form the building blocks of our bodies.

News

One-Year Survival of Transplanted Cells Marks Progress in Early Retinal Regeneration Studies

Researchers have recently presented promising clinical data at the International Society for Stem Cell Research demonstrating that transplanted human neural progenitor cells survived for at least one year in participants with Retinitis Pigmentosa (RP).

Retina UK Sight Loss Survey 2025 Findings from our survey of over 600 people living with inherited sight loss. June 2025

Every experience counts: Insights from our sight loss survey

A huge thank you to everyone who completed our 2025 sight loss survey. This year we received over 600 responses. It follows similar surveys in 2019 and 2022 which led directly to the introduction of our Unlock Genetics and Discover Wellbeing resources, as well as shaping our work with the professional community who support people with inherited sight loss.

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