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We are proud to announce that Amar Latif - adventurer, entrepreneur, TV presenter and public speaker - is to join Retina UK as a volunteer ambassador.

• News

Steve has been volunteering for Retina UK since its formation in 1976 and has been a part of the Helpline team since the early 1980s.. He remembers very well a caller named Khadeja, who called the Helpline multiple times, following her diagnosis with RP in 1999.

• Case study - community
• Written

Retina UK is a charity. Our Board of Trustees is responsible for the strategic management of the organisation and delivery of our charitable objectives.

The BBC World Service has undertaken an investigation of unproven treatments for retinitis pigmentosa (RP) and has produced a documentary film, called Blind Faith, which is available on BBC iPlayer.

• News
• Retinitis pigmentosa

Ashley has completed the London Marathon numerous times. He was part of #TeamRetinaUK in 2021 and talks here about his experience.

• Case study - supporter
• Written

Graeme's son is living with retinitis pigmentosa and he has decided to take on an extreme challenge - running 250km across the Sahara Desert, with 6 stages, varying in length from 21km to 82 km, over 7 days.

• Case study - community
• Written

Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.

• Case study - community
• Written

Our West Yorkshire peer support group recently welcomed The Blind Poet, Dave Steele, who is living with retinitis pigmentosa, to their meeting. He talks candidly about his diagnosis, his poetry and his optimistic mindset. 

• Podcast
• Audio

Retina UK aims not only to progress research along established threads, but to stimulate new thinking, encourage innovative approaches and nurture original ideas.

Raise money to help support people affected by inherited sight loss to lead better lives today and accelerate the search for treatments for the future.