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Be a souper-star and raise funds whilst having lunch for #TeamRetinaUK

X-linked inheritance means that the faulty gene is located on the X chromosome, the larger of the two sex chromosomes.

Information for healthcare professionals: Genetic testing and counselling in inherited retinal disease

Early results from clinical testing of a gene therapy to treat X-linked retinitis pigmentosa (XLRP) have shown partial reversal of sight loss in some patients.

• News
• Retinitis pigmentosa

Join us for our upcoming webinar!

• Webinar

Graeme's son is living with retinitis pigmentosa and he has decided to take on an extreme challenge - running 250km across the Sahara Desert, with 6 stages, varying in length from 21km to 82 km, over 7 days.

• Case study - community
• Written

Raise money to help support people affected by inherited sight loss to lead better lives today and accelerate the search for treatments for the future.

Run the Leicestershire Half Marathon and make every mile matter for people living with inherited sight loss. A great course, a great challenge, and a great way to support Retina UK in 2026.

• Running
• United Kingdom

This scenic course takes you past the amazing sights of Cambridge and is ideal for those tackling their first 13.1 mile event and those looking for a PB. You’ll get plenty of support out on the course with multiple aid stations, pacers and big crowds.

• Running
• United Kingdom

The Great North Run is the largest half marathon in the world, taking place annually in Newcastle.

• Running
• Newcastle