Frequently asked questions
The following questions are often asked by people contacting Retina UK.
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Retina UK’s Souper Tuesday
Be a souper-star and raise funds whilst having lunch for #TeamRetinaUK
x-linked inheritance
X-linked inheritance means that the faulty gene is located on the X chromosome, the larger of the two sex chromosomes.
For professionals
Information for healthcare professionals: Genetic testing and counselling in inherited retinal disease
Gene therapy shows promise in tackling X-linked RP
Early results from clinical testing of a gene therapy to treat X-linked retinitis pigmentosa (XLRP) have shown partial reversal of sight loss in some patients.
Webinar: Influencing with Retina UK
Join us for our upcoming webinar!
Graeme Ives: 6 marathons in the Sahara Desert for Retina UK
Graeme's son is living with retinitis pigmentosa and he has decided to take on an extreme challenge - running 250km across the Sahara Desert, with 6 stages, varying in length from 21km to 82 km, over 7 days.
Fundraising
Raise money to help support people affected by inherited sight loss to lead better lives today and accelerate the search for treatments for the future.
Leicestershire Half Marathon 2026
Run the Leicestershire Half Marathon and make every mile matter for people living with inherited sight loss. A great course, a great challenge, and a great way to support Retina UK in 2026.
Great North Run 2027
The Great North Run is the largest half marathon in the world, taking place annually in Newcastle and you could be there with #TeamRetinaUK!