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Diagnosis and beyond

Making yourself aware of the what you are entitled to, and understanding the diagnosis pathway for inherited sight loss, will put you in a stronger position to seek better support.

The Spring 2023 edition of the Retina UK newsletter, Look Forward, which includes articles about our upcoming events, research updates and more.

Look Forward – Summer 2023 – Issue 180

Did you join either of our Conferences this year? You can read about them inside this edition of Look Forward. We’ve had some fantastic feedback from our delegates so if you weren’t able to attend, you can watch or listen to the recordings from the day on our website.

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Trusts and Foundations

Inherited retinal dystrophies (IRDs) are the leading cause of blindness in working-age people in the UK, and children as young as eighteen-months are regularly diagnosed.

Retina UK community focused peer support groups: Young adults peer support group

Young Adults Peer Support Group

Thursday 4 December 2025, 7.00pm - 8.30pm - via Zoom - Come and join Martik and the group for our festive Young Adults online social catch up where we are delighted to be joined by Emma Quigley & Joe Maguire from Blind in Business.

Eye Examination

Retinitis Pigmentosa Awareness Month 2026

February is Retinitis Pigmentosa Awareness Month and we'd love you to get involved to enhance the work of Retina UK, as we continue to support those who are living with retinitis pigmentosa and other inherited sight loss conditions.