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Are you looking for a thrill with a view? Could you take on a skydive for Retina UK this summer? Join us at various airfields around the UK this July.

• Extreme Challenges
• Various

A recording of the Retina UK Professionals' Conference on 27 September 2024. The Conference was held at the Pendulum Hotel in Manchester and online.

• Conference
• Audio
• Video

James, who lives with retinitis pigmentosa, is running the TCS London Marathon in April 2025 to raise vital funds for Retina UK.

• Case study - community
• Written

A recording of the Retina UK Annual Conference on 28 September 2024. The Conference was held at the Pendulum Hotel in Manchester and online.

• Conference
• Audio
• Video

The Retina UK Professionals’ Conference is aimed at anyone who works with our community in a professional capacity.

• Conferences
• Online

Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.

These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.

The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.

Many research studies could not take place without the participation of people living with inherited sight loss.