Search

A recording of the Retina UK Annual Conference on 28 September 2024. The Conference was held at the Pendulum Hotel in Manchester and online.

• Conference
• Audio
• Video

Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.

These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.

The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Could you take on an adventure of a lifetime for Retina UK and take part in the Sahara Desert Trek in November 2026?

• Walks & Treks
• United Kingdom

Could you take on an adventure of a lifetime for Retina UK and take part in the Great Wall of China Trek in November 2026?

• Walks & Treks
• United Kingdom

Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.

Many research studies could not take place without the participation of people living with inherited sight loss.

RideLondon has been postponed for 2025, but if you would like to find out more information about future events, please get in touch to join our waiting list.

• Cycling
• London

Do you want to take part in the world-famous TCS London Marathon, from the comfort of your own city? Take part virtually on race day and join #TeamRetinaUK in 2025!

• Running
• United Kingdom