Meet our Trustee: Rob Halliwell
Rob is a Chief Technology Officer based in Manchester, with over 20 years’ experience leading technology, software development and digital transformation.
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Quiz for Retina UK
Do you know your facts from your fiction? Host a quiz for Retina UK and raise vital funds for our ground-breaking work.
Volunteer for us
Volunteers are highly valued members of the Retina UK team and essential to our ability to achieve our vision of a world where all those affected by inherited retinal conditions are able to live a fulfilling life.
Skydiving
Skydiving is an exhilarating experience, and you can do this while supporting our cause. Various dates and locations are available across the UK.
Thames Path Challenge
Walk, jog or run this wonderful route along the River Thames. There are 100km, 50km and 25km challenge options.
West Midlands Local Peer Support Group
Tuesday 27 October, 7.00pm - 8.00pm - via Zoom - Please come and join facilitator Perm and the group for their latest online catch up where we are delighted to welcome our inspirational guest speaker Shazia Begum.
How we can support you in your role
Whether you are a professional looking for practical information for yourself, or practical or emotional support for your clients, online, by phone or face-to-face, we're here to help. All of our services are free to access and offered in a range of accessible formats.
Atsena Therapeutics present positive clinical data for LCA1 gene therapy program
Astena Theraputics' investigational gene therapy, ATSN-101, has shown promising long-term results in an early clinical trial for LCA1, a sever inherited retinal disease caused by mutations in the GUCY2D gene.
KIO-301 shows promising safety results in early-stage testing
KIO-301, an experimental ‘photoswitch’ drug in development by Kiora Pharmaceuticals has shown encouraging safety results in early-stage testing and is now being evaluated in a phase 2 study known as ABACUS-2. It is currently being trialled in those with advanced RP, with the potential to expand into choroideremia and stargardt disease.
Look Forward – Autumn 2025 – Issue 187
Since the publication of this newsletter our founder and honorary president Lynda Cantor MBE has passed away. We are all deeply saddened by this news.