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Let’s talk about tech

As people living with sight loss we are constantly looking for solutions to make our lives easier without too much effort or cost writes Jonathan Abro.

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Quiz for Retina UK

Do you know your facts from your fiction? Host a quiz for Retina UK and raise vital funds for our ground-breaking work.

A machine with a digital display with a hand in a green glove pressing the screen with their index finger

Therapy development updates

There are many ongoing clinical and laboratory studies around the world, exploring innovative approaches to treating inherited sight loss.

News

Retina UK Sight Loss Survey 2025 Findings from our survey of over 600 people living with inherited sight loss. June 2025

Every experience counts: Insights from our sight loss survey

A huge thank you to everyone who completed our 2025 sight loss survey. This year we received over 600 responses. It follows similar surveys in 2019 and 2022 which led directly to the introduction of our Unlock Genetics and Discover Wellbeing resources, as well as shaping our work with the professional community who support people with inherited sight loss.

News

Steve Goulden on the left of the image and Khadeja Ali on the right

Meet our volunteers: Steve and Khadeja

Steve has been volunteering for Retina UK since its formation in 1976 and has been a part of the Helpline team since the early 1980s.. He remembers very well a caller named Khadeja, who called the Helpline multiple times, following her diagnosis with RP in 1999.

New ‘vision’ and identity sight loss charities

The collective partnership of eight of the leading charities in the sight loss sector, known for the last three years as the VI Charity Sector Partnership, has re-launched under a new identity of the ‘Vision Partnership’ with a re-invigorated purpose and new strategic focus.