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A male runner smiles as he holds his Marathon medal.

Take on a challenge

With your challenge, you’ll help support people affected by inherited sight loss to lead better lives today and accelerate the search for treatments for the future.

Refsum syndrome

Refsum syndrome is an inherited metabolic condition, associated with elevated phytanic acid plasma levels, which impacts many body systems.

The cover of the winter 2024 edition of Look Forward

Look Forward – Winter 2024 – Issue 184

Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students.

We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

The cover of the spring 2025 edition of Look Forward, featuring a photograph of comedian Chris McCausland on the cover

Look Forward – Spring 2025 – Issue 185

This edition of Look Forward includes the very latest news about an experimental therapy by Retina UK funded researchers, an article about one of our PhD students, a calendar of events in 2025, the usual research news round-up and lots more. Please take the time to complete our Sight Loss Survey, enclosed with this edition. You can find out more about the Survey.

Alstrom syndrome

Alstrom syndrome is an inherited condition which affects many body systems.

Image shows two runners stood side by side smiling. Both are running 10k running numbers and blue Retina UK tops.

Local Runs In Your Community

As well as many of the well-known races, we also have exclusive places available in hundreds of local runs. Wherever you live, you can run as part of #TeamRetinaUK this year!

Cone-rod dystrophy

Cone-rod dystrophies are a group of inherited diseases that affect the photoreceptor (light sensing) cells that are responsible for capturing images from the visual field.

Jump In July 2024

Could you take on a thrilling skydive for Retina UK this summer? Join us at various airfields around the UK this July.

Retinitis pigmentosa

Retinitis pigmentosa (RP) is an inherited eye condition that affects the photoreceptor cells responsible for capturing images from the visual field.

Jump In July 2025

Are you looking for a thrill with a view? Could you take on a skydive for Retina UK this summer? Join us at various airfields around the UK this July.