Search

With your challenge, you’ll help support people affected by inherited sight loss to lead better lives today and accelerate the search for treatments for the future.

Refsum syndrome is an inherited metabolic condition, associated with elevated phytanic acid plasma levels, which impacts many body systems.

Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students.

We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

• Look Forward
• Audio
• Written

This edition of Look Forward includes the very latest news about an experimental therapy by Retina UK funded researchers, an article about one of our PhD students, a calendar of events in 2025, the usual research news round-up and lots more. Please take the time to complete our Sight Loss Survey, enclosed with this edition. You can find out more about the Survey.

• Look Forward
• Audio
• Written

Alstrom syndrome is an inherited condition which affects many body systems.

As well as many of the well-known races, we also have exclusive places available in hundreds of local runs. Wherever you live, you can run as part of #TeamRetinaUK this year!

• Running
• Close to home

Cone-rod dystrophies are a group of inherited diseases that affect the photoreceptor (light sensing) cells that are responsible for capturing images from the visual field.

Retinitis pigmentosa (RP) is an inherited eye condition that affects the photoreceptor cells responsible for capturing images from the visual field.

This Easter bank holiday weekend, join Retina UK at various airfields around the UK and face your fears by taking on a skydive for us!

• Extreme Challenges
• Various

As part of Retina UK's birthday celebrations, we would love for you to face your fears by taking on a skydive for us!

• Extreme Challenges
• Various