Easter Fundraising
If you could use the long bank holiday weekend to fundraise for Retina UK, we would love to hear from you!
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Chester Marathon 2026
Join #TeamRetinaUK at the Chester Marathon 2026 and proudly run in support of our vital work.
Volunteer for us
Volunteers are highly valued members of the Retina UK team and essential to our ability to achieve our vision of a world where all those affected by inherited retinal conditions are able to live a fulfilling life.
A genetic diagnosis for RP can give rise to unexpected surprises
James Birtley is a Retina UK supporter and volunteer who is living with retinitis pigmentosa. He is also a scientist with a particular interest in the structure of proteins, the complex molecules that form the building blocks of our bodies.
Therapy development updates
There are many ongoing clinical and laboratory studies around the world, exploring innovative approaches to treating inherited sight loss.
Research grant awards worth £870K announced
Retina UK is delighted to announce that it has awarded three new research grants worth more than £870,000.
Belite Bio announces promising phase 3 results for Stargardt disease
The latest research news from Retina UK.
Information and support
Are you affected by inherited sight loss? We are here to help.
x-linked inheritance
X-linked inheritance means that the faulty gene is located on the X chromosome, the larger of the two sex chromosomes.